| Founded | October 26, 1986 |
|---|---|
| Location | 1010 Wayne Avenue, Suite 770, Silver Spring, Maryland, 20910 |
| Key people | Ellen Stovall (Senior Health Policy Advisor) |
| Area served | United States |
| Focus | Cancer Survivorship |
| Employees | 11 |
| Motto | the power of survivorship...the promise of quality care |
| Website | www.canceradvocacy.org |
The National Coalition for Cancer Survivorship (NCCS) is a 501(c)(3) nonprofit organization cancer advocacy organization based just outside of Washington, DC in Silver Spring, MD. It is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors.
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NCCS’s mission is to advocate for quality cancer care for all Americans.
NCCS was founded in Albuquerque, New Mexico in October 1986. It was established as a 501(c)(3) non-profit by the Internal Revenue Service in 1987. NCCS relocated to the Washington, DC area in 1992. One year later, NCCS convened other patient advocates to create the Cancer Leadership Council (CLC). In 1998, NCCS led the national grassroots campaign THE MARCH...Coming Together to Conquer Cancer. 250,000 people headed to the nation's capital in support of the event. In 1998, NCCS launched its premiere resource, the Cancer Survival Toolbox. Journey Forward, a treatment summary program, was launched in partnership with three other organizations in 2009.
The award-winning Cancer Survival Toolbox is a free, self-learning audio program that has been developed by leading cancer organizations to help people develop important skills to better meet and understand the challenges of their illness. The program contains a set of basic skills to help navigate a diagnosis and special topics on key issues faced by people with cancer. In 2009 two modules were added: Living with Multiple Myeloma and Living with Non-Hodgkin Lymphoma.
Journey Forward was launched in February 2009 through a partnership between NCCS, WellPoint, Inc., the UCLA Cancer Survivorship Center and Genentech. Journey Forward is a program that promotes the use of treatment summaries and follow-up plans that give clear steps for care and monitoring after active cancer treatment. Journey Forward’s custom-made Survivorship Care Plan Builder is available for use by any oncologist. In addition, Journey Forward offers an electronic Medical History Builder where patients can easily record their health history.